Privacy Policy

Last modified: February 25, 2025

1. Introduction

Transplants.org, Inc. ("Transplants.org" or "we") is a 501(c)(3) tax-exempt not-for-profit organization who respects your privacy and is committed to protecting it by adhering to this policy (the "Policy").

This Policy describes the types of information we may collect from or about you when you visit our website www.transplants.org (our "Website"), or via email, text or other electronic communications, and our practices for collecting, using, maintaining, protecting, and disclosing that information.

It does not apply to information collected by:

• Us offline or through any other means, including on any other website operated by us or any third party; or
• Any third party, including through any application or content that may link to or be accessible from or through the Website.

Please read this Policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not agree with our policies and practices, your choice is not to use our Website. This policy may change from time to time. Your continued use of this Website after we make changes is deemed to be acceptance of those changes, so please check the policy periodically for updates.

2. Information We Collect About You and How We Collect It

We collect several types of information from and about users of our Website, including information:

• By which you may be personally identified, such as name, e-mail address, or any other identifier by which you may be contacted online or offline ("personal information"); and/or
• That is about you but individually does not identify you, such as type of professional work;
• About your internet connection, the equipment or device you use to access our Website, and usage details.

We collect this information:

• Directly from you when you provide it to us.
• Automatically as you navigate through the site. Information collected automatically may include usage details, IP addresses, and information collected through cookies, web beacons, and other tracking technologies.

A. The information we collect on or through our Website may include:

• Information that you provide by filling in forms on our Website. This includes information provided at the time of subscribing to news or updates from Transplants.org or otherwise engaging with Transplants.org or our activities. We may also ask you for information when you report a problem with our Website.
• Records and copies of your correspondence (including e-mail addresses), if you contact us.

B. Information We Collect Through Automatic Data Collection

As you navigate through and interact with our Website, we may use automatic data collection technologies to collect certain information about your equipment, browsing actions, and patterns, including:

• Details of your visits to our Website, including traffic data, location data, logs, and other communication data and the resources that you access and use on the Website.
• Information about your computer and internet connection, including your IP address, operating system, and browser type.

The information we collect automatically helps us to improve our Website and to deliver a better and more personalized service, including by enabling us to:

• Estimate our audience size and usage patterns.
• Store information about your preferences, allowing us to customize our Website according to your individual interests.
• Recognize you when you return to our Website.

The technologies we use for this automatic data collection may include:

• Cookies (or browser cookies). A cookie is a small file placed on the hard drive of your computer. You may refuse to accept browser cookies by activating the appropriate setting on your browser. However, if you select this setting, you may be unable to access certain parts of our Website. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issue cookies when you direct your browser to our Website.
• Web Beacons. Pages of our Website and our e-mails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit Transplants.org, for example, to count users who have visited those pages or opened an e-mail and for other related website statistics (for example, recording the popularity of certain website content and verifying system and server integrity).

3. Third-Party Use of Cookies and Other Tracking Technologies

Some content or applications on our Website are served by third parties, including content providers and application providers. These third parties may use cookies alone or in conjunction with web beacons or other tracking technologies to collect information about you when you use our Website, and they may associate that information with information they collect about your online activities over time and across different websites and other online services. In some cases, these third parties may use this information to provide you with interest-based (behavioral) advertising or other targeted content.

4. How We Use Your Personal Information

We may use the personal information that we collect from or about you:

• To send you follow-up communications related to Transplants.org or Transplants.org-related developments, events, or updates.
• To directly communicate with you about your use of our Website or to respond to e-mail, submissions, or other communications from you.
• To analyze, correlate, compare, or match subscriber data with patient data for more personalized and more informative follow-up communications, including patient data from other non-profits, public-private partnerships, and other groups or organizations within the healthcare industry and/or the heart transplantation space.
• To send you solicitations for financial gifts to Transplants.org.
• To improve our operation and services, including developing new services, features, and functionality, and analyzing the usage trends and preferences of our users.
• To protect Transplants.org' rights and the rights of others, including to detect and prevent fraud; to protect, enforce, or defend the legal rights, privacy, safety, or property of our services, our employees, or agents or other users; and to comply with applicable law.
• To notify you about changes to our Website, any products or services we offer or provide though our Website, or to our Terms of Use or this Policy.
• In any other way we may describe when you provide the information.
• To fulfill any other purpose for which you indicate you are providing the information.

5. Disclosure of Your Information

We may disclose aggregated information about our users, and information that does not identify any individual to the extent permitted by applicable law.

We may disclose personal information about you:

• To our subsidiaries and affiliates, including any of the funds we sponsor under Transplants.org Ventures.
• To our contractors, service providers, and other third parties we use to support Transplants.org in activities such as technology, communications management, or otherwise, and who are bound by contractual obligations to keep the personal information confidential and to use it only for the purposes for which we disclose it to them.
• For any other purpose described by us at the time when you provide the information.
• To fulfill the purpose for which you indicate you are providing it.
• To comply with any court order, law, or legal process, including to respond to any government or regulatory request.
• To enforce or apply our Terms of Use and other agreements, including for billing and collection purposes.
• If we believe disclosure is necessary or appropriate to protect the rights, property, safety, or reputation of Transplants.org, our customers, or others. This includes exchanging information with other companies and organizations for the purposes of fraud protection.
• In connection with any proposed or actual merger, reorganization, restructuring, or sale of all or a portion of our organization or assets related to Transplants.org, to a party to such transaction, and we will endeavor to bind such party to protect the personal information it receives.

6. Choices About How We Use and Disclose Your Information

We strive to provide you with choices regarding the personal information you provide to us. We have created mechanisms to provide you with the following control over your information:

• Tracking Technologies. You can set your browser to refuse all or some browser cookies, or to alert you when cookies are being sent. If you disable or refuse cookies, please note that some parts of this site may then be inaccessible or not function properly.
• News and Other Updates from the Company. If you do not wish to have your e-mail address or other contact information used to share news, research, or any other updates, you can opt-out by clicking "unsubscribe" in the news or other update e-mails we send you, or you may send us an e-mail asking to be omitted from future communication distributions.

7. Accessing and Correcting Your Information

You can review, request access to, correct, delete, or otherwise change any personal information that you have provided to us by e-mailing us at privacy@transplants.org. We may not accommodate a request to change information if we cannot verify the identity of the person requesting the change, or if we believe that granting the request would be unwarranted as a matter of law or cause the information we maintain to be inaccurate.

8. Data Security

We have implemented measures designed to secure your personal information from accidental loss and from unauthorized access, use, alteration, and disclosure, such as multifactor authentication for access to the personal information we maintain. Although we strive to fully protect the security of your personal information, we cannot guarantee absolute security. Any transmission of personal information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the Website.

9. Use of Our Website by Minors

Our Website is not intended for minors, and if we learn we have collected or received personal information from a child under 13, we will delete that information.

10. Changes to This Policy

From time to time, we may make changes to this Policy, and when we do, we will update the "Last Modified" date on the first page of the Policy. If we make changes that are material with respect to uses or disclosures of personal information, we will post a notice on the home page of the Website stating that the Policy has been updated. You are responsible for reviewing any such changes prior to continuing to use the Website.

11. Contact Information

If you have questions about this Policy and our privacy practices, please contact us at privacy@transplants.org.