Privacy Policy

Introduction

Transplants.org, Inc. ("Transplants.org", "we", "our", or "us"), a not-for-profit organization, respects your privacy and is committed to protecting it by adhering to this policy (the "Policy").

This Policy describes the types of information we may collect from or about you when you visit our website www.transplants.org (our "Website") or through other means, including via email, text or other electronic communications, and our practices for collecting, using, maintaining, protecting, and disclosing that information. If you provide us with personal information pursuant to a specific consent, the more specific terms of that consent will govern our practices regarding that information.

Please read this Policy carefully to be sure you are comfortable with our policies and practices before using the Website. This policy may change from time to time. We may update this Policy at any time, so please check the Policy periodically for updates. If we make changes that would materially affect your rights, we will post a notice on Site stating that the Policy has been revised. Any changes to the Policy will become effective upon the date of our posting of the revised Policy on the Site. If you visit the Site following the effective date of the revised Policy, you will be deemed to have read and accepted the Policy's updated terms.

Information We Collect About You and How We Collect It

A. Information You Affirmatively Provide

• We collect information about you that you provide by filling in forms on our Website, such as your name, contact information, and information regarding your transplant experience, if any. If you make a financial gift to us, we will collect your billing information through our service provider Stripe, but we will not retain any financial account (including credit card) information you provide through Stripe.
• Information you provide to create an account with us, including personal details, a username, and password.

B. Information We Collect Through Automatic Data Collection

As you navigate through and interact with our Website, we may use automatic data collection technologies to collect certain information about your equipment, browsing actions, and patterns, including:

• Details of your visits to our Website, including traffic data, location data, logs, and other communication data and the resources that you access and use on the Website.
• Information about your computer and internet connection, including your IP address, operating system, and browser type.

The information we collect automatically helps us to improve our Website and to deliver a better and more personalized service, including by enabling us to:

• Estimate our audience size and usage patterns.
• Store information about your preferences, allowing us to customize our Website according to your individual interests.
• Recognize you when you return to our Website.

The technologies we use for this automatic data collection may include:

• Cookies (or browser cookies). A cookie is a small file placed on the hard drive of your computer. You may refuse to accept browser cookies by activating the appropriate setting on your browser. However, if you select this setting, you may be unable to access certain parts of our Website. Unless you have adjusted your browser setting so that it will refuse cookies, or rejected certain cookies through our cookie banner options, our system will issue cookies when you direct your browser to our Website.
• Web Beacons. Pages of our Website and our e-mails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit Transplants.org, for example, to count users who have visited those pages or opened an e-mail and for other related website statistics (for example, recording the popularity of certain website content and verifying system and server integrity).

Third-Party Use of Cookies and Other Tracking Technologies

Some content or applications on our Website are served by third parties, including content providers and application providers. These third parties may use cookies alone or in conjunction with web beacons or other tracking technologies to collect information about you when you use our Website, and they may associate that information with information they collect about your online activities over time and across different websites and other online services. In some cases, these third parties may use this information to provide you with interest-based (behavioral) advertising or other targeted content.

We provide a cookie banner with mechanisms to opt out of the placement of cookies when you visit our Website. You also can take steps to opt out of targeted advertising, as described at https://privacyinternational.org/guide-step/4317/android-opt-out-targeted-ads-and-renew-your-advertising-id.

How We Use Your Personal Information

We may use the personal information that we collect from or about you:

• To send you follow-up communications related to Transplants.org or Transplants.org-related developments.
• To directly communicate with you about your use of our Website or to respond to e-mail or other communications from you.
• To analyze, correlate, compare, or match user data with patient data for more personalized and more informative follow-up communications, including patient data from other non-profits, public-private partnerships, and other groups or organizations within the healthcare industry and/or the heart transplantation space.
• To send you solicitations for financial gifts to Transplants.org.
• To improve our operation and services, including developing new services, features, and functionality, and analyzing the usage trends and preferences of our users.
• To protect Transplants.org's rights and the rights of others, including to detect and prevent fraud; to protect, enforce, or defend the legal rights, privacy, safety, or property of our services, our employees, or agents or other users; and to comply with applicable law.
• To notify you about changes to our Website, any products or services we offer or provide though our Website, or to our Terms of Use or this Policy.
• In any other way we may describe when you provide the information.
• To fulfill any other purpose for which you indicate you are providing the information.

Disclosure of Your Information

We may disclose aggregated information about our users, and information that does not identify any individual to the extent permitted by applicable law.

We may disclose personal information about you:

• To our subsidiaries and affiliates, including any of the funds we sponsor under Transplants.org.
• To our contractors, service providers, and other third parties we use to support Transplants.org in activities such as technology, communications management, or otherwise, and who are bound by contractual obligations to keep the personal information confidential and to use it only for the purposes for which we disclose it to them.
• For any other purpose described by us at the time when you provide the information.
• To fulfill the purpose for which you indicate you are providing it.
• To comply with any court order, law, or legal process, including to respond to any government or regulatory request.
• To enforce or apply our Terms of Use and other agreements, including for billing and collection purposes.
• If we believe disclosure is necessary or appropriate to protect the rights, property, safety, or reputation of Transplants.org, our customers, or others. This includes exchanging information with other companies and organizations for the purposes of fraud protection.
• In connection with any proposed or actual merger, reorganization, restructuring, or sale of all or a portion of our organization or assets related to Transplants.org, to a party to such transaction, and we will endeavor to bind such party to protect the personal information it receives.

Rights You May Have Regarding Your Personal Information

Depending on the laws of the jurisdiction in which you reside, you may have one or more of the following rights with respect to some or all of your personal information:

• To request a description of (i) the categories of personal information we have collected about you, (ii) the categories of sources for the personal information we have collected about you, (iii) our business or commercial purpose for collecting that personal information, and (iv) the categories of third parties (excluding service providers) with whom we have shared the personal information during the past 12 months.
• To request access to the specific pieces of personal information we have collected about you.
• To request that we correct your personal information.
• To request that we delete your personal information.
• To opt-out of or request that we limit the processing of certain of your personal information.
• To opt-out of the sharing of your personal information for cross-context behavioral advertising.

If you wish to exercise any of these rights with respect to your personal information, please submit a request to us by emailing us at: privacy@transplants.org.

We will not discriminate against you for exercising any of the rights to which you are entitled.

You may make a request on your own behalf and, if you are the parent or guardian of a minor child, you also may make a request related to your child's personal information. You may also designate an authorized agent to make a request on your behalf, in which case, you must provide us with a signed declaration stating that you permit that individual to act on your behalf and stating such individual's full name, address, email address, and phone number. We may, after receiving your request, require additional information from you to verify your or your designated agent's identity in order to protect your personal information from unauthorized disclosure or deletion at the request of someone other than you or your legal representative. We cannot grant your request if we cannot verify your identity or authority to make the request.

Please be aware that we are not obligated to grant all requests that you may make, depending on applicable law. For example, we may deny a request for deletion of personal information if we have a legal basis for retaining that information. If your request is denied, you may appeal that decision by contacting our privacy support team at privacy@transplants.org. Within 45 days of receiving your appeal request, we will inform you in writing of any action taken or not taken in response, along with a written explanation of the reasons in support of the response. Depending on the state in which you reside, you may have the right to contact your state attorney general if you have concerns about the result of the appeal or would like to submit a complaint. If this right is available to you, we will provide you with instructions on how to do so.

We endeavor to respond to a verifiable request within forty-five (45) days of its receipt. If we require more time (up to 45 additional days), we will inform you of the reason and extension period in writing.

Data Security

We have implemented measures designed to secure your personal information from accidental loss and from unauthorized access, use, alteration, and disclosure, such as multifactor authentication for access to the personal information we maintain. Although we strive to fully protect the security of your personal information, we cannot guarantee absolute security. Any transmission of personal information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the Website.

Use of Our Website by Minors

Our Website is not intended for minors, and if we learn we have collected or received personal information from a child under 13, we will delete that information.

Contact Information

If you have questions about this Policy and our privacy practices, please contact us at privacy@transplants.org.