Patient of the Month
When he was just 10 years old, Chris Johnson received the shocking diagnosis of nephrotic syndrome after his mom took him to the pediatrician because of a swollen leg.
At birth, Carter was diagnosed with branchio-oto-renal syndrome, a rare genetic disorder that has caused hearing loss and an underdeveloped kidney that only functions at 20%. Doctors say a kidney transplant is necessary.
In January of 2014, Niki was admitted to the hospital and diagnosed with sudden cardiac artery dissection after going into cardiac arrest.
This came as quite a shock, as she had never experienced any heart issues, nor is it hereditary. Doctors say a heart transplant is essential to her survival.
In 1999, David visited his doctor because he thought he had the flu.
He was shocked to learn he was actually suffering from end-stage renal failure, which would eventually require a kidney transplant. The following year, David began regular dialysis treatments, which he endured for nine long years, along with countless doctors’ visits and procedures. Then, in 2006, he received the call that a donor kidney was available, and he rushed to the hospital!
During a routine check-up, Paul Pokorny learned his white blood cell count was low.
In 2010, Monique was diagnosed with severe chronic obstructive pulmonary disease (COPD), which has caused irreversible damage to her lungs.
Doctors say a lung transplant is essential to her survival. Sadly, she understands the effects of lung disease all too well, as her mother lost her health battle with lung cancer in the late 90s.
In 2009, Vance was diagnosed with chronic obstructive pulmonary disease (COPD) after having trouble sleeping and experiencing labored breathing.
Doctors said a double-lung transplant was essential to his survival. Thankfully, he received his lifesaving transplant on August 7, 2014!
We're so excited to report that Christina received her transplant on July 20, 2014!
At age 16, she was diagnosed with Wilson’s disease, an autosomal recessive genetic disorder that has severely damaged her liver. Doctors said a liver transplant was essential to her survival.
In 2008, at the age of 36, Roger was rushed to the hospital, and he later awoke in the critical care unit, connected to a machine with his mother Linda praying at his side.
She explained he was suffering from end-stage renal disease due to hypertension. His kidneys had failed. Doctors say a kidney transplant is necessary.
Aleah has been ill since birth, and she was diagnosed with a life-threatening liver disease in 2012 at age 4. Now, doctors say a liver transplant is essential to her survival.
Joy Love Williams is fighting for her life.
In 2012, Jim was diagnosed with idiopathic pulmonary fibrosis, and in his case, there is no known cause of the condition.
Doctors say a double-lung transplant is essential to his survival.
In 1999, Donice accidentally inhaled pool chemicals and lost 40 percent of her lung function within five minutes.
After the accident, she learned she was suffering from alpha-1 antitrypsin deficiency, a genetic disorder that can severely damage the lungs and the liver. Over the years, her lungs have worsened, and now doctors say a lung transplant is essential to her survival.
When Kwesi was just 18 months old, he was hospitalized with pneumonia. No one knew the cause, and he was eventually discharged after recovering from the illness. Little did his family know that this bout with pneumonia would be the beginning of a lifetime of health battles.
In 2006, Kimetra was diagnosed with lupus, which severely impacted her kidney function.
Earlier this year, her kidneys began failing as a result of the disease, and doctors now say a kidney transplant is critical to her survival.
As a child, Denise was diagnosed with Wilson’s disease, a genetic disorder causing too much copper to accumulate in her liver. In 2012, after experiencing difficulties recovering from a routine surgery, doctors learned she had developed cirrhosis and was in liver failure. A liver transplant is essential to her survival.
At age 10, Jonathon was diagnosed with Becker muscular dystrophy.
Sadly, a very similar disease took the life of his brother in 2003. This illness has caused heart failure and dilated cardiomyopathy, which led doctors to implant a left ventricular assist device (LVAD). The LVAD acts as a mechanical heart to keep his heart beating regularly.
In 2005, after a routine yearly physical, Jorge De Gracia received the shocking diagnosis of focal segmental glomerulosclerosis, a chronic kidney disease. Doctors now say a kidney transplant is essential. While awaiting his transplant, he endures nine-hour dialysis treatments every day, which take a toll on his quality of life.
When Mark Leatherman was just 13, he was diagnosed with Berger’s disease, which had already begun damaging his kidneys. The doctor told his mother Mark’s kidneys would likely fail in about 25 years. That time has come, and doctors say a kidney transplant is critical to his survival.
Last year, Pam Small was diagnosed with myelofibrosis, a disease causing her bone marrow to be replaced with scar tissue.
Doctors say a stem cell transplant is essential. Thankfully, a perfect donor match, who has been found in Germany, will come to the U.S. to serve as her stem cell donor.
One morning in 2006, Joey awoke experiencing congestion and heaviness in his chest.
Assuming he had the flu or a cold, he waited a couple days before visiting his doctor after he was able to find relief with a hot shower and rest. At the doctor’s office, Joey’s blood work revealed a white blood cell count that was off the charts, so he was encouraged to go to the hospital, as meningitis was going around a local university at the same time.
At his mom’s 20-week ultrasound, doctors could see there was a problem with Teddy Reid's kidneys, but they couldn’t tell how severe the problem was. When he was just six days old, Teddy’s parents learned he was in kidney failure and would need a kidney transplant. Although he is on the transplant waiting list, he cannot receive his transplant until he gains enough weight to sustain the operation.
During a high school pep rally in 2003, her younger brother jokingly scared her by jumping on her back, causing her to faint.
After multiple tests, she received the shocking diagnosis of congestive heart failure and cardiomyopathy. Doctors say a heart transplant is essential to her survival. However, while she’s sick enough to need heart failure treatment, her heart function has not declined enough to add her to the transplant waiting list.
In 2007, Jack Guarriello was referred to a specialist after a routine physical revealed that his liver enzymes were elevated.
Further testing showed he was battling a life-threatening liver disease, and last September he was diagnosed with liver cancer. In October, he experienced a subdural hematoma twice, requiring two serious brain surgeries and 20 days in ICU.
Moksha has experienced breathing difficulties related to allergies and asthma since childhood. In her early 30s, she was diagnosed with chronic obstructive pulmonary disease (COPD), mainly bronchiectasis, but doctors don’t know why she developed the condition. Testing has also shown that she suffers from other lung disorders including evidence of fibrosis and sarcoidosis. A double-lung transplant is essential to her survival.
In 2004, Sabrina went to the hospital because she thought she was having a heart attack.
Noah is facing a health battle most of us can’t even imagine, and he’s only 9 years old.
Young Noah was recently diagnosed with cardiomyopathy, and both his mother and grandpa have been afflicted with similar conditions. Doctors say a heart transplant is critical to his survival.
Earlier this year, while driving, Steve suddenly felt like an elephant was sitting on his chest.
He pulled over and called a friend for help, then called 911 and was rushed to the hospital. Steve was shocked to learn he had suffered a heart attack—so severe it’s often called “the widow maker”—and had 99% blockage in his heart. Until that day, he had never experience a single symptom of heart disease.
In 2010, while on a songwriting trip in New York, JK Lee developed a sudden aortic tear that nearly cost him his life.
In 2008, Paula donated blood and received the shocking news that she was suffering from hepatitis C, which she contracted from a blood transfusion in 1987.
She underwent treatment for two years, and doctors say a liver transplant is critical to her survival. She has no health insurance and can’t even be evaluated for a transplant until she has health coverage and raises funds for her out-of-pocket expenses.